In 1969, the community in Jacksonville became aware of the sickness and death of its black children and adults with anemia, jaundice, and painful crises. A few people (the “Youth Congress”) organized the Jacksonville Area Sickle Cell Disease Association and located it at the J.F. Kennedy Community Action Center on Iona Street in Springfield.
The Florida State Sickle Cell Disease Association and the National Association of Sickle Cell Disease were founded two years later, and we promptly became a member of both – with delegate status. All 48 states, three U.S. Territories and Washington, D.C. have chapters.
Our mission-though supportive of medical - is to educate the public, and raise awareness of Individuals responsibility to prevent sickle cell disease. This is done by group meetings, with later screening and counseling sickle hemoglobin (Hgb) carriers. We believe this should be voluntary - and not mandatory.
It is our vision that sickle cell disease - through educated conception and advances in clinical care, a medical “cure” is near.
This problem will no longer rob people of an enjoyable quality of life.